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Scans are the worst.
Scans are the worst. This is not surprising. It’s pretty common knowledge to people in the brain tumour world, and I’m sure its pretty familiar in other medical circles as well. There’s even a catchy little term for it: scanxiety. It sounds cute and clever, and it ties a complicated set of emotions and triggers Read more
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At least…
“At least…” is a slippery little sentence starter. It’s not so devious in the middle of a sentence when it’s used to talk about a tangible quantity of something, such as: “I’ve eaten at least half of that Costco-sized bag of potato chips.” But it’s also one of those qualitative expressions that, when worked in Read more
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Perks of the Job
There are a lot of shit moments in my new world as a caregiver. My career, as it was, is on hold. There are trying times doing emotional, psychological battle with a three-and-a-half-year-old. There are long, boring waits in medical centres and rehab facilities and drawn out, anxiety-inducing waits for test results at home while Read more
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Game Face
In my youth… Ugh, it pains me to say that: “In my youth…” While still technically in my late thirties (very late thirties), the last year has aged me physically and emotionally well into late middle age. When my daughter got sick, I chopped all my hair off into a pretty severe mom pixie. At Read more
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Music Therapy 2: A Better Son/Daughter by Rilo Kiley
So the beast in the background has been growing. Fuck you tumour! The last month has been peppered with amazing and devastating moments that I’m too tired to go into right now, so I’m turning again to the music that seems to capture the great swings in motivation and insight that come with medical trauma Read more
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Music Therapy: Your Heart is a Muscle
Again, it’s been a while since I’ve posted. Life has been less dramatic, but pretty action packed with a veritable bunt cake (I’m hungry) of both post-trauma stuff and standard family stuff. It’s been: Two parts normal, everyday routine: school drop offs and pickups, extra-curriculars, groceries and laundry, negotiating what’s appropriate to wear as the Read more
Layer Cake Life 